Scleroderma Patient Education Conference

Get informed and take charge of your health with renowned scleroderma experts from across the globe.
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Saturday, October 20, 2018
Northwestern Memorial Hospital
Lurie Medical Research Building
Chicago, IL

This event has ended but you can see the presentations on our YouTube Channel.

Speakers & Topics

Christopher Denton, PhD, FRCP - The State of Scleroderma Clinical Trials 
Professor of Experimental Rheumatology and Consultant Rheumatologist and Centre Head; Royal Free Hospital and University College London, UK
Jörg Distler, MD - Translational Research
Heisenberg Professor for Translational Matrix Biology, Chair of Internal Medicine III; Friedrich-Alexander University, Erlangen-Nuremberg, Germany
Lorinda Chung, MD - Raynaud Phenomenon & Digital Ulcers in Ssc
Associate Professor of Medicine (Immunology and Rheumatology) and Dermatology and Director of the Stanford Scleroderma Center of Excellence; Stanford University
Richard Burt, MD - Hematopoietic Stem Cell Transplantation (HSCT)
Chief of Immunotherapy and Autoimmune Diseases, Professor of Medicine, Division of Immunotherapy and Autoimmune Diseases; Northwestern University, Feinberg School of Medicine
Laura Hummers, MD - How we Monitor Disease Activity and the Use of Biomarkers
Associate Professor of Medicine, Clinical Director, Division of Rheumatology and Co-Director of the Johns Hopkins Scleroderma Program; Johns Hopkins Medicine, Baltimore, MD
Tamara Faulkner, LCSW, CADC - Opportunity in Adversity: The Work of Artist Paul Klee
Clinical Social Worker in Private Practice
Educator & Critic of Visual Arts; Art Institute of Chicago, Chicago, IL

Schedule

8:00 – 9:00             Registration and breakfast
9:00 – 9:30             Welcome and introductory remarks 
9:30 – 10:20           Christopher Denton, PhD, FRCP
  • The State of Scleroderma Clinical Trials
10:20 – 10:40         Break
10:40 – 11:30         Laura Hummers, MD
  • Biomarkers for Scleroderma 
11:30 – 12:20         Jorg Distler, MD
  • Translational Research
12:20 – 1:05           Lunch
1:05 – 1:55             Walter Barr Keynote - Richard Burt, MD 
  • Hematopoietic Stem Cell Transplantation (HSCT)
1:55 – 2:45             Lorinda Chung, MD
  •  Raynaud Phenomenon and Digital Ulcers in Ssc
2:45 – 3:05             Break
3:05 – 3:55             Tamara Faulkner, LCSW, CADC 
  • Opportunity in Adversity: The Work of Artist Paul Klee
 3:55                       Closing remarks

"For me, being in a room full of people who knew exactly what I was going through was the most incredible thing. Scleroderma has been an isolating experience for me. Now I know I'm not alone!"
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Thank you to our sponsors!

Location


​Northwestern Memorial Hospital
Lurie Medical Research Building
​First Floor, Hughes Auditorium
303 E. Superior St.
​Chicago, IL 

​Parking: Validated parking is available for the parking garage at 222 E. Huron St. (between St. Clair and Fairbanks). Please pick up a pass at the conference.